2011 ALS Walk

June 4th we had our annual Walk to Defeat ALS. It was a perfect day weather wise and it was a great day over all. Our team, Gordie's Groupies raised over $14,000 and had 96 walkers. I am grateful for the show of support from everyone that contributed to the cause. I hope a cure is found soon because it is a devastating disease.

People tell me how much of an inspiration I am to so many people. I certainly don't feel like it. But when I think about others that have inspired me, I think I get it. To be quite honest, I'm only doing what comes as a natural thing for me to do, and that is to trust God and let him have his way in my life.


I often picture it this way. I'm like a little boy holding on to my Fathers hand walking along and looking up at him, asking why did this happen to me? He looks down at me, smiles, and says to me, trust me son, everything will be alright. Content with his answer for now, we continue walking hand in hand. I have come to the conclusion I don't have to know all the reasons why things happen, but simply realize God has everything under control because that's what he said. One day, it will all make sense and we will be grateful for the lessons learned.

Some Thoughts About Easter

Wow, May is here already! How time flies by! This Easter, I have been thinking a lot about God's amazing grace and how incredible our heavenly Father is. Our pastor has been speaking about this the past several weeks and it just reminded me of how amazing and incredible our Father really is.
There have been times I questioned how God could allow some of his children to suffer, when there are those who despise God and seem to live healthy prosperous lives. God promises us our rewards in heaven while they enjoy their rewards here on earth.
Regardless of my my disease, I can say God is good and just. After all, he suffered more than any of us will ever have to. He gave his life so that you and I can have salvation from our sins. That is why his love for us is so amazing! There is absolutely nothing we can do on our own to receive God's amazing grace. He gives his grace freely to all regardless of our past history or how good we think we are. Like the story of the prodigal son, he is anxiously waiting for us to come to him no matter how dirty we are from the filth and slop of this world.
I love the song amazing grace that saved a wretch like me. It just resonates with me.
As for me physically, I'm doing about the same as the last report, other than that, my speech is no longer understandable and my fingers and hands are becoming weaker.
I'm trying to enjoy each day and make the best of my situation.

Dine to Donate

April 5th the Family Center of Gap had an event at Angela's Cafe called Dine to Donate to raise funds for me for an iPad. The iPad is a tool I can use to help me communicate. There are different applications available that make it possible to communicate. The one I'm using now is called Speak It. You simply type what you want to say and it will repeat it with an audible voice. I cant reply instantly but it is portable and gives me a way to be able to communicate with others. I'm extremely grateful for the staff at the cafe for their excellent service and for their generosity throughout the evening. Once again I'm humbled by the kindness and generosity of people in the community and friends. You all have made this journey a little bit easier to cope with. You all are truly a blessing and I can't thank you all enough for your support and generosity. Thanks for being a blessing in my life. You are sincerely loved and appreciated! God bless!

Five Years Ago

Five years have passed since I was diagnosed with ALS. A lot has changed since that dreadful day. Then I was still walking, driving, eating, talking, and doing all my own personal care. It wasn't long until my walking got more difficult, I had to give up driving, and needed some assistance with my personal care. Now I can't walk, talk, eat, drive, or do any of my personal care. It's amazing what we take for granted until we lose the ability to do the most simplest of tasks. But I trust God with a bigger plan for my life than what I can see. God provides comfort in every situation.

I found this prayer that seems to fit my thoughts perfectly.

Dear God, You know my heart and my heartaches. You have showered me with blessings and carried me through the valley of pain and sadness. Thank you for the Godly influence of special people in my life. Thank you for those who pray for and encourage me. I even thank you for the trials and hard times I have been through, for they have strengthened my faith. I praise you for giving me a spirit of love, hope, and acceptance rather than allowing me to become angry, bitter, and downcast. I praise you God, from whom all blessings flow. May I, in return be a blessing to you. In Jesus name, Amen

March 9, 2011

March 9 was my birthday. I am grateful for the gift of another year. Whether you are young or older, every day is a gift from God. My birthday was a great day. All the birthday wishes I received on facebook along with the tons of cards I got made me feel special and loved. I am so thankful or the love, prayers and support everyone has shown to Emy and me in our difficult journey with ASL. You all are truly a blessing God has given us. I am humbled by the outpouring of love displayed to me today. Thank you!
I would like to express my sincere thanks to the wonderful caregivers God has blessed us with. Irina is a special person with a heart of gold. She has a sweet caring spirit and is so positive about everything. She is very patient with me when I try to speak. Sometimes I think can read my mind and knows what I need before I even ask. She's also good for Emy. She provides her with encouragement and support. Not just a caregiver for me but also a true friend to
Emy. Trinity is one of the other caregivers. She does a good job as well with a light hearted attitude.
And then there's my wife and my sons and their wives who also take good care of me. I could not do this journey without them. I am truly blessed and I love each one one of them. I don't know what this year will hold for me but I know who holds the future and that's all that matters.

Febuary 2011

Today is a beautiful day which makes me excited for spring. This winter I didn't get out much due to the cold weather. I don't function well in cold weather. Several weeks ago, my infection came back around my feeding tube site. We were able to get it cleared up fairly quick so that was a blessing. Then I got a cold which set me back for a few weeks. Thankfully I was able to get over it before it got too bad. Hopefully I won't have anything else to deal with the rest of the winter.
I am thankful for my family and the love and support they provide. I thank God for a wife that loves me and is always there for me. I know it's not always the easiest thing for her to deal with but she never gives up. My boys and their wives are a blessing as well. They help out when needed and are very faithful to spend time with us. God has blessed me with an awesome family and I want to say I love you all very much.

Today

Today the weather is kind of crappy,
which really doesn't make me feel very happy.
I hate this life with ALS
but I guess God knows what's best.
I'm trying my best to understand God's plan for my life
Why he would allow a disease that brings me so much strife.
I pray for healing but healing hasn't come
But I know he can do it, because he did it for some.
Sometimes I wonder does he even care
But because of my faith in him, I know he is always there.
There are times when I can't feel him, but I know he is near
that's when I reach out to him and know I have nothing to fear.
All things work together for the good
I want to believe that and wish I understood.
He wants us to trust and obey
and promises to show us the way
Today the weather may be dark and grey
but it won't be long till there will come a brighter day,
If we remain faithful to the end
with him in heaven we will get to spend.
So when troubles come your way
and there seem to be no answers when you pray
One thing I know, that certainly is a must
His ways are not our ways and in Him we must trust!

January 2011

Christmas was a fun time with my family We exchanged some gifts and enjoyed the day together. What would I do without my loving family. The best gift they could ever give me, is knowing they have a heart to serve the Lord. They truly are a blessing!

As we look to another year ahead of us, we have no idea what it will hold for us. But one thing is certain, whatever happens, we can be certain God is in control. I want to learn to trust him no matter what comes my way. Like our pastor said on Sunday, this year, let's make an effort to trust God in every situation. How do we respond when life throws us a curve? let's purpose in our hearts to trust him no matter how we perceive things to be.

May God bless you in this coming year!

Christmas 2010

Aah the joy of Christmas. But for some it can be a difficult time due to the loss of a loved one or a family member suffering with a fatal disease or some other tragic event. Let's not forget about those in those types of circumstances. Give freely, shower them with love and prayers, anything to make their situation easier to deal with. God promised never to leave or forsake us no matter what we face. You never know what an act of kindness or love can do for someone going through difficult times.

April of 2006,I was diagnosed with ALS. By Christmas I was in a wheelchair. That was devastating to realize I'll never walk again. After that Christmas, I didn't enjoy the holidays all that much. Five years later, I've come to accept my condition and realize that this is the plan God has for my life right now. I can say, this year I'm actually looking forward to the holidays surrounded by family and friends. God is good in every phase of my life. Most of all, I'm grateful that God cared enough about me to send his Son to die for my wretched self. After all, that is why we celebrate Christmas.

I remember when I worked in the mall, I soon discovered Christmas isn't that joyous for a lot of people. What I saw were folks scurrying about, stressed out, irritated, complaining about long lines, and fretting whether this person will be happy with their gift. I had never realized how the world had distorted the true meaning of Christmas until then. I wonder did they even enjoy the season after all that.
This year when you're enjoying the fun and festivities of the holidays, show some kindness to those less fortunate, pray for those who are hurting, and give out of love like our heavenly Father loved us.
God bless you all!

Thanksgiving 2010

Thanksgiving, what exactly comes to your mind when you think about this holiday? For some it may be preparing for that big turkey dinner. For others it is day spent with family and friends enjoying good food and fellowship. And for some it is the start of the shopping madness trying to be the first to take advantage of the deals and promotions the stores offer.

For me, this Thanksgiving I am grateful for another year God has granted me. I try to enjoy each day I'm given. I look forward to spending time with my family. I'm thankful for a day set aside to reflect on all the blessings we enjoy. I think of all the people in this world that don't experience the material things we take for granted and yet we yearn for more. There are people in countries that have nothing but yet they are happy and thankful for what they have because of their relationship with God. Their happiness isn't in material things. In the end they won't mean a thing but our relationship with God is eternal.
This year I am thankful for all the blessings I have despite this disease. I am thankful for my relationship with Jesus because without him I would not experience his grace and strength that sustains me in these hard times.
So this year, when you're enjoying you turkey, don't forget about those less fortunate than we are.

As stated in my previous post, I have been dealing with an infection around my feeding tube site. After two months it finally seems to be cleared up or at least under control. Thank you all for your prayers.
Not much has changed other than my overall strength has gotten weaker. I spend most of my time listening to music, sleeping or on the computer. Sunday evening we went to a concert in Philly to see Needtobreathe. It was a fun time with great music shared with friends and family. With the holidays fast approaching, it gives me something to look forward to. All in all God is good and has everything under control.

October 2010

This past month has been kind of hard for me. I've been dealing with an infection around the peg tube site. The antibiotics my doctor gave me helped clear it up but then it got worse again. the type of infection I have is very persistent and hard to get rid of. So I went to Hershey to see the doctor that put the tube in. She put me on stronger antibiotics which seemed to work until I started to react to them. Now I'm back on the ones I was taking before. The site looks better but not sure what the next step will be. I may have to have tube replaced which is something I don't really look forward to. I guess it could be worse.
On top of all that, I'm having a difficult time with my inability to enjoy food, communicate effectively, and generally everything I was able to do before. But one thing I'm thankful for are great caregivers who take care of me. I really appreciate my family and the love and support they provide for me. they always make sure to hang out and spend time with me.
I'm in a little bit of a funk right now but it will pass. God always comes through and provides the strength and grace to face each new challenge that we face. All things work together for the good to those that love the Lord. Joy comes in the morning.
Thank you for your continuing prayers.

Gordie's Day

For five years now Buck and Verna put together a fundraiser to help us with the costs associated with this disease. It consists of a motorcycle ride, bar-b-que chicken and baked goods, car show, and activities for the kids. Thanks to Doug Groff for bringing the fastest buggy in Lancaster County or possibly in the world giving rides to those brave enough to get in it. All in all it is a fun day. The weather was absolutely perfect! Emy and I sincerely appreciate everyone involved to make this day possible and the hard work that goes with it. Also, a special thanks to Charlie Pennel for making the bar-b-que chicken.
We really appreciate everyone's support and generosity. With your help we are able to cover our insurance deductible and other expenses not covered by insurance. Thank you all for caring and making this difficult journey a little easier for us. Know that you're loved and appreciated!

Seasons

With a slight chill in the air I know fall is fast approaching. While I do enjoy the beauty of fall, I don't really care for the long dreary days of the winter months. I guess that comes from all the years of working outside in all sorts of weather. Now that I'm no longer able to work, I don't mind winter as much.
Life is like the seasons, we go through different seasons in our journey of life. When I reflect back over my life and all I've been through and the different seasons I've experienced up to where I am now, sometimes the only thing I can think of is why Lord. There have been seasons of joy, despair, hope, satisfaction, contentment, and those periods of drought when I felt parched and thirsty, lost and confused, delusional from the scorching heat of the dessert, searching for the oasis I knew was out there somewhere. Just when it seemed everything was finally going the way I wanted it to, I was thrown another curve ball, the diagnosis of ALS.
In the last five years, I went from being a strong healthy self sufficient man to someone that has to rely on other people to do just about everything for me. While this certainly not the path I would have chosen for myself, it certainly has taught me many things about life. Am I angry at God? Not at all. God said all things work together for the good. I need to trust him with that. As a friend I met online used to say, "Dang ALS, but God is good" She recently went home to be with the Lord. Along with her, I'm declaring God is good!
Just as each passing day brings us closer to the end of the year, so it is with life. That day will come for everyone. Some are born and never experience a single day of life. Some lives will be cut short due to a tragic accident or disease. Whatever the case may be, we all live for a season.

Courtney & Jerry's Wedding

On 08/18/10 Courtney and Jerry got married. It was a beautiful day, beautiful setting, and a perfect day for a beautiful couple. Courtney is my neice and her husband Jerry hold a special place in my heart. To watch them grow in their walk with the Lord is very exciting for me. Their children are precious. My prayer for them is a long and happy life together and God's blessing in their lives. It was exciting to be able to share this special day with them. Love you both!

Clinic Visit

Yesterday I had my ALS clinic appointment which went fairly well. Not a lot of changes other than my speech is where no one can understand me anymore. My breathing function dropped from 83% to 61% this visit. The doctor didn't seem to worried about it at this point.

When I think back about five years ago when I began having my first symptoms, it's hard to describe all the emotions and the changes that took place. I had no idea how much my life would change. After all the crying, anger, depression, the why Lord, praying for healing, I slowly began to realize I will have to trust God with what he is trying to teach me and the plan he has for my life. This certainly isn't the path I would have chosen for me but we never know what God has for us.

Sometimes I feel like Job slowly being stripped of everything I have. But like Job, I will not lose my faith in him. My faith has been built on the rock and no storm is going to destroy that. I have my Christian parents and the values they have taught me to thank for that.

There are many questions I still have like why God allows sickness, why he chooses to heal some and not others. But no matter what, I know it will all make sense in the end.

Before all this I was living my life like most everyone else. I lived like I was invincible, never thinking my life could be cut short whether by disease, accident, or anything else. That only happens to other people. I guess what I'm trying to say is, looking back I would probably lived a little differently. We are all here for a season and our life isn't always about us. Jesus taught us to care for others by clothing the naked, feed the hungry, and shelter for the homeless. By doing these things we are doing them for him and showing them the love of Jesus. I'm not sure where I'm going with this other than we can get so caught up in our lives we lose sight of what God really wants for our lives.