Five Years Ago

Five years have passed since I was diagnosed with ALS. A lot has changed since that dreadful day. Then I was still walking, driving, eating, talking, and doing all my own personal care. It wasn't long until my walking got more difficult, I had to give up driving, and needed some assistance with my personal care. Now I can't walk, talk, eat, drive, or do any of my personal care. It's amazing what we take for granted until we lose the ability to do the most simplest of tasks. But I trust God with a bigger plan for my life than what I can see. God provides comfort in every situation.

I found this prayer that seems to fit my thoughts perfectly.

Dear God, You know my heart and my heartaches. You have showered me with blessings and carried me through the valley of pain and sadness. Thank you for the Godly influence of special people in my life. Thank you for those who pray for and encourage me. I even thank you for the trials and hard times I have been through, for they have strengthened my faith. I praise you for giving me a spirit of love, hope, and acceptance rather than allowing me to become angry, bitter, and downcast. I praise you God, from whom all blessings flow. May I, in return be a blessing to you. In Jesus name, Amen

March 9, 2011

March 9 was my birthday. I am grateful for the gift of another year. Whether you are young or older, every day is a gift from God. My birthday was a great day. All the birthday wishes I received on facebook along with the tons of cards I got made me feel special and loved. I am so thankful or the love, prayers and support everyone has shown to Emy and me in our difficult journey with ASL. You all are truly a blessing God has given us. I am humbled by the outpouring of love displayed to me today. Thank you!
I would like to express my sincere thanks to the wonderful caregivers God has blessed us with. Irina is a special person with a heart of gold. She has a sweet caring spirit and is so positive about everything. She is very patient with me when I try to speak. Sometimes I think can read my mind and knows what I need before I even ask. She's also good for Emy. She provides her with encouragement and support. Not just a caregiver for me but also a true friend to
Emy. Trinity is one of the other caregivers. She does a good job as well with a light hearted attitude.
And then there's my wife and my sons and their wives who also take good care of me. I could not do this journey without them. I am truly blessed and I love each one one of them. I don't know what this year will hold for me but I know who holds the future and that's all that matters.